The links here are based off of the questions I get asked the most…at least the ones that have link-able answers.

Gastroparesis

• American College of Gastroenterology – general information on signs, symptoms, testing, treatment etc.
• International Foundation for Functional Gastrointestinal Disorders – general information as well as more specific patient resources and management tips
• Living (Well!) With Gastroparesis – Crystal Saltrelli wrote the book on living with gastroparesis, literally. She also has a ton of free resources, videos and blog posts.
• G-PACT – non-profit organization created by patients for patients with GI motility disorders
• Gastroparesis and Intestinal Failure Trust UK

POTS/Dysautonomia

• Vanderbilt Autonomic Dysfunction Center – one of the leading centers in research and treatment for autonomic disorders
• Dysautonomia International – volunteer run non-profit with information, support, resources and ways to get involved
• Dysautonomia Information Network – similar to the above
• A very basic crashcourse in dysautonomia from my blog
  • Dysautonom-a-what?

Enteral and Parenteral Nutrition

• Oley Foundation – education, advocacy and networking for both tube feeding and TPN
• Feeding Tube Awareness Foundation – started and run by parents to support and raise positive awareness of children with feeding tubes, but lots of great resources for adult patients too
• Feeding Tube Awareness Week – launched by FTAF, usually taking place in early February
• I’ve also written a few blog posts about life with a feeding tube/ TPN
  • A day in the life part one: Feeding Tube 101
  • A day in the life part two: the rest of it
  • When you can’t eat part one: the facts
  • When you can’t eat part two: the feels
  • When you know someone who can’t eat
  • Grey’s Anatomy got it wrong

Crochet – This might seem strange to you, but I’ve actually received a number of emails and messages from people interested in learning to crochet and wondering where to start

• Moogly – videos of stiches from the most basic to more complex ones as well as tons of free patterns
• Petals to Picots – more great tutorials for beginners
• Repeat Crafter Me – no stitch basics, but amazing fun and free patterns